Dysautonomia Awareness Month- How To Raise Awareness In Your Daily Life

Spoonie Life

Dysautonomia– (Dis-auto-NO-mia) is a general term used to describe any disorder of the autonomic (automatic) nervous system.

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Guest Bloggers Wanted

Spoonie Life, The Spoonie Student

Hey 🙂

I’m looking for guest bloggers to write for my ‘The Spoonie Student’ segment about their experiences of studying with a chronic illness. The type of posts that I’m looking for include:

  • A day in the life of a Spoonie student,
  • Study tips for school/ college/ university
  • Personal experiences of studying with a chronic illness.

Of course, you are welcome to pitch your own idea if you have one. As always, I am looking for honest descriptions of living with chronic illness, so there’s no need to sugar coat anything.

Written posts (500 words max.) and photo stories are welcome. Comment below or DM me on Instagram if you’re interested in submitting something.

Best Wishes,

Katherine WG

What is POTS?

Health

Image result for pots illness

Postural Orthostatic Tachycardia Syndrome (POTS) is a chronic health condition that is characterised by a large increase in heart rate (30 bpm) upon standing. Other symptoms include dizziness, nausea and fatigue which are usually relieved when lying down.

A Second Chance At Life With POTS

Spoonie Life

close up of leaf

When I first got sick, I lost everything: my income, my degree course and my social life. I struggled to stand up for more than two minutes and I was unable to leave the house by myself. I could not think or speak coherently. I couldn’t even read a book. I slept most of my days away. It was 2015, I was 22 and I was told that I was a medical mystery.

Study Tips For Spoonies- Community Post

The Spoonie Student

design desk display eyewear

Whether you’re at school or University, studying with a chronic illness is hard and you may even think that it is impossible. There’s no need to put off your education because of your illness as there are people available to help you every step of the way.

My Thoughts on the Fictional Illness in ‘Dirk Gently’s Holistic Detective Agency’

Spoonie Life
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Hannah Marks as Amanda Brotzman in BBC America’s Dirk Gently

 

*Contains some spoilers*

My husband and I chose to watch Dirk Gently’s Holistic Detective Agency because of the Corgi. Going in, I had no idea that this show would be featuring a chronic illness.

How To Deal With Insensitive Comments- Community Post

Spoonie Life

adult art conceptual dark

When you live with a chronic illness, insensitive comments from people come with the territory. They may come from friends, family, co-workers, medical professionals or even strangers. Some people may not realise what they’re doing and others know exactly what they’re doing (I’m looking at you random man in the street.)

Planning For The New School Year

The Spoonie Student

laptop calendar and books

Starting University can be a daunting task for anyone; add a chronic illness to the mix and you may think that it’s impossible. Whether you’re starting University for the first time or you’re returning after a long break (like me), here are a few things that you can do to make the start of the year a bit easier.

My Thoughts After Watching ‘Brain on Fire’

Spoonie Life
brain-on-fire-trailer-2017

Chloe Grace Moretz as Susannah Cahalan in the Netflix adaptation of  ‘Brain on Fire’

* Contains Spoilers*

Like many people with a chronic illness, I recently watched the Netflix adaptation of Brain on Fire. It is based on the memoir, Brain on Fire: My Month of Madness by Susannah Cahalan and follows Susannah’s journey to a diagnosis the rare illness, anti-NMDA receptor encephalitis.

How I Manage My Chronic Fatigue

Spoonie Life

apartment bed carpet chair

Fatigue has always been one of my most debilitating symptoms. Unfortunately, it is also the one that has been the most poorly managed by my doctors. When I first developed symptoms, my doctor told me there was nothing they could do to help me as there was no longer a specialist in the area for ME/ CFS due to budget cuts.

They suggested that I should just ‘go for a walk’ every day and in time my fatigue would improve.

Of course, this was unsuitable for me due to my other symptoms (tachycardia and low blood pressure) and the fact that I could not stand up for more than two minutes.